About Us
TARS Awareness Texas is a nonprofit organization dedicated to increasing awareness, education, and support for individuals and families affected by TARS Syndrome (Thrombocytopenia with Absent Radius), a rare genetic condition occurring in approximately 1 out of every 200,000 births.
Because TAR Syndrome is so rare, many families find limited and often outdated information when seeking answers. Healthcare providers may also have limited experience treating or monitoring TAR-related medical needs. TAR Syndrome Awareness Texas was founded to change that reality.
OUR MISSION
Our mission is to educate, connect, and empower those impacted by TAR Syndrome through accessible information, advocacy, and family-focused support. We work to ensure that no family faces this rare diagnosis without knowledge, resources, or community.
WHAT WE DO
Awareness and Education
We provide clear, accurate, and easy-to-understand information about TAR Syndrome for families, healthcare providers, educators, and community partners. Our goal is to improve early understanding, appropriate care planning, and informed decision-making.
Family Support and Advocacy
We connect families navigating TAR Syndrome with guidance, peer connections, emotional support, and practical knowledge. We believe every family deserves encouragement, reassurance, and a place where they are understood.
Resource Development
We develop and share educational tools, outreach materials, and support content designed to improve awareness and quality of care across Texas and beyond.
Community and Collaboration
We work to foster collaboration among medical professionals, educators, and support organizations to encourage continued learning and compassionate care for those affected by TAR Syndrome.
OUR VISION
A world where TAR Syndrome is recognized, understood, and supported — and where every individual affected has access to the care, respect, inclusion, and resources they deserve.
OUR VALUES
Compassion — Supporting families with empathy and respect
Education — Providing accurate, trusted information
Community — Ensuring no one walks this journey alone
Integrity — Operating with transparency and purpose
Hope — Believing in possibility, ability, and quality of life
WHO WE SERVE
• Families and caregivers
• Individuals living with TAR Syndrome
• Healthcare professionals
• Educators and service providers
• Community and advocacy partners​
